The guidelines set out the principles of good practice in respect of informing and offering suitable advice to relatives of persons diagnosed as suffering from heritable disorders such asadrenoleukodystrophy.
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Adrenoleukodystrophy, and the milder form, adrenomyeloneuropathy, cause adrenal insufficiency combined with neurological symptoms.
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His parents therefore decided to take matters into their own hands, and began researching myelin andadrenoleukodystrophy.
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Adrenoleukodystrophycan also cause adrenal insufficiency.
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